So, I'm no healthcare expert. Nor do I understand why it's a big deal for everyone to have basic health coverage (and even gasp! have the government help foot the bill). However, my own experiences with navigating the world of doctors, insurance companies and prescriptions has left me realizing it's a full time job to manage one's healthcare.
As a graduate student, I am afforded insurance, so I don't have to get married or get another job in order to have health insurance. As someone with a pre-existing condition, this is key. well color me broke when I realized my prescription benefits had been cut from $3500 to $2000. I went to the pharmacy and was told I would have to shell out $300+ a month for my 30 dang pills. Well. Of course I freaked out. After calling the insurance and the pharmacy, I called student health and a wonderful woman gave me a plethora of resources to check on free or reduced medication.
Many of the programs are for low-income, poor, or working-poor families. I only looked at the ones that were free, not the paid services that "found" free programs. At any rate. I applied for a few but was denied because I did have coverage or I made too much money. Yet I found one, Xubex that helped me find the appropriate programs for which to apply.
I got a free 30 day supply and will be able to order a 90 day supply for $40 ( i was paying $25/mo under my student insurance). Come August 22, I'll have my coverage again, but I wonder just how many people go through these types of struggles? I wanted to share a little bit of information if it could be of benefit.
Some helpful resources:
Xubex
Pfizer Friends
RxAssist
Thursday, May 14, 2009
Friday, February 13, 2009
Happy Valiumtimes Day!!
Today, I was talking with a friend about loneliness. Not the type of loneliness that leads to blog writing on a Friday night *ahem*, but that existential loneliness that creeps up temps a temps to smack one upset the head. The kind of loneliness that Valentine's Day seems to have been created to eradicate.
I know, I know, call me a cynic (ah, ah, ah, I am healing from that condition), but doesn't it strike you as a mite bit suspicious that smack-dab in the middle of winter
(no matter how unseasonably warm it's been), we celebrate this thing called Valentine's Day? Oh, I get it, sure, I'll buy some jerk-off some cards, candy or $700 boots, only to have them lie, cheat and be an all-around a-hole? yeah, that sounds good...bitter: they name is woman.
Beyond that, we're in like, an economic crisis or something, but love will save the day, right? Right? RIGHT?????!!! At least, for a day. Possibly maybe. Probably not. But back to this loneliness. It's possible to feel this loneliness, or longing, that has noting to do with Eros, with romantic love, and still be incredibly content, happy and joyous. I'm one of those people for whom romantic love has always been the pinnacle of existence. I lived, blinded by love, as it were.
I'm not hating. When people are in love and experiencing that true partnership with another human being, it's absolutely inspiring and lovely, In fact, the love extends beyond the partners to encompass everyone in the lives of the couple. I've been more desperate in love than I'd like to admit, yet, that feels like a kind of phase I had to encounter in order to see how much it really didn't work.
We certainly need more genuine love, loving-kindness, compassion, generosity and true care in the world. We don't need more rageful, jealous fits ending in violence, boy-meets-girl romances, lies, manipulation and co-dependent patsies in the world. It's hard to come by, this true love, which is extended to all without demand for anything back. Co-emergent with it is this existential loneliness, this knowledge that all the things I have or think I have cannot ease the ache, the longing.
Gratefully, humor provides much relief. Humor and really good music. In honor of both and of St. Valentine, I offer you these. Enjoy!
Teen Girl Squad
I know, I know, call me a cynic (ah, ah, ah, I am healing from that condition), but doesn't it strike you as a mite bit suspicious that smack-dab in the middle of winter
(no matter how unseasonably warm it's been), we celebrate this thing called Valentine's Day? Oh, I get it, sure, I'll buy some jerk-off some cards, candy or $700 boots, only to have them lie, cheat and be an all-around a-hole? yeah, that sounds good...bitter: they name is woman.
Beyond that, we're in like, an economic crisis or something, but love will save the day, right? Right? RIGHT?????!!! At least, for a day. Possibly maybe. Probably not. But back to this loneliness. It's possible to feel this loneliness, or longing, that has noting to do with Eros, with romantic love, and still be incredibly content, happy and joyous. I'm one of those people for whom romantic love has always been the pinnacle of existence. I lived, blinded by love, as it were.
I'm not hating. When people are in love and experiencing that true partnership with another human being, it's absolutely inspiring and lovely, In fact, the love extends beyond the partners to encompass everyone in the lives of the couple. I've been more desperate in love than I'd like to admit, yet, that feels like a kind of phase I had to encounter in order to see how much it really didn't work.
We certainly need more genuine love, loving-kindness, compassion, generosity and true care in the world. We don't need more rageful, jealous fits ending in violence, boy-meets-girl romances, lies, manipulation and co-dependent patsies in the world. It's hard to come by, this true love, which is extended to all without demand for anything back. Co-emergent with it is this existential loneliness, this knowledge that all the things I have or think I have cannot ease the ache, the longing.
Gratefully, humor provides much relief. Humor and really good music. In honor of both and of St. Valentine, I offer you these. Enjoy!
Teen Girl Squad
Tuesday, February 03, 2009
Happy Five Years Shante
As of February 2009, I have been out of all cancer treatments for 5 years. I know I have been celebrating this 5 year anniversary for months, but here's the breakdown:
September 3, 2008-5 year anniversary of my diagnosis
October 1, 2008- 5 year anniversary of my mastectomy
February 1, 2009- 5 year anniversary of end of chemo
So all of my treatment is done and it's been 5 years, uhh, what does that mean?
It's the 5 year survival rate. I had Stage 1 breast cancer, so I have good odds of not kicking the bucket for a while due to cancer. I am a very, very, very blessed and lucky woman. I don't talk much about my cancer because it's become this very present reality to me, almost like a friend, a mundane reality...not that I don't take it seriously, or even get scurred sometimes, but it doesn't rule my life, nor do I live in fear of my death.
So to honor my survival and thriving, a poem:
A few pounds of flesh
taken for granted.
Mouths that caressed,
hands that teased,
fingers splayed on brownness.
I matured young, blood rushing from the space
between my legs at the tender age of eleven,
but the two hills of fat never quite grew.
I was proud of my body: slim, feline, strong.
It withstood the poisons of youthful chemistry,
the risks of promiscuity,
the trauma of neglect,
Arms like bands of steel,
legs small and muscled
a hidden, round jewel of a butt.
It was a day like any other; September, in fact.
A smile upon my face, first day of graduate school.
my nerves, popping, only a year married,
dreams of houses and children and vacations and lectures to give.
plans, designs, hopes, fears, all on 14th street and 8th avenue.
in a moment, he uttered "cancer."
like a whisper, like a curse.
the shock, slapping me, hot tears cascading
and he talks, not without compassion, but he talks and talks and talks
am i going to die? will it eat my flesh and leave me skeletal?
who will tell my wife? my parents? my brothers?
songs lyrics bounce around a lucid mind
mamma i wanna sing
but i must concentrate on how to save my life...
what can happen in 5 years?
a marriage dissolved
a degree earned only to pursue another
fall in love with her, and she leaves
two presidents. one, black, like me.
a dog or two.
saints of Tibet, vows taken, these are not to a woman. or any other person.
wars began, more lives lost.
many more friends and acquaintances touched by cellular overpopulation.
and a scar.
a scar that marks me, separates me.
makes me wonder if anyone could love me
and not be scared of my death, or her own.
a scar that i hid behind prosthetics and strategically placed clothing
until i said fuck it.
i'm asymmetrical in the most tragically comical way.
but on my wall hangs framed, pictures my dear friend took of me.
a day before the cutting, before i became an amputee.
in the light, near the world's most famous bridge
i look so young, beautiful, defiant, terrified, peaceful.
a tank top, eggplant.
locks that would fall out from chemo.
black jeans
a studded belt
silver bracelet glittering
and two breasts, one soon to part.
September 3, 2008-5 year anniversary of my diagnosis
October 1, 2008- 5 year anniversary of my mastectomy
February 1, 2009- 5 year anniversary of end of chemo
So all of my treatment is done and it's been 5 years, uhh, what does that mean?
It's the 5 year survival rate. I had Stage 1 breast cancer, so I have good odds of not kicking the bucket for a while due to cancer. I am a very, very, very blessed and lucky woman. I don't talk much about my cancer because it's become this very present reality to me, almost like a friend, a mundane reality...not that I don't take it seriously, or even get scurred sometimes, but it doesn't rule my life, nor do I live in fear of my death.
So to honor my survival and thriving, a poem:
A few pounds of flesh
taken for granted.
Mouths that caressed,
hands that teased,
fingers splayed on brownness.
I matured young, blood rushing from the space
between my legs at the tender age of eleven,
but the two hills of fat never quite grew.
I was proud of my body: slim, feline, strong.
It withstood the poisons of youthful chemistry,
the risks of promiscuity,
the trauma of neglect,
Arms like bands of steel,
legs small and muscled
a hidden, round jewel of a butt.
It was a day like any other; September, in fact.
A smile upon my face, first day of graduate school.
my nerves, popping, only a year married,
dreams of houses and children and vacations and lectures to give.
plans, designs, hopes, fears, all on 14th street and 8th avenue.
in a moment, he uttered "cancer."
like a whisper, like a curse.
the shock, slapping me, hot tears cascading
and he talks, not without compassion, but he talks and talks and talks
am i going to die? will it eat my flesh and leave me skeletal?
who will tell my wife? my parents? my brothers?
songs lyrics bounce around a lucid mind
mamma i wanna sing
but i must concentrate on how to save my life...
what can happen in 5 years?
a marriage dissolved
a degree earned only to pursue another
fall in love with her, and she leaves
two presidents. one, black, like me.
a dog or two.
saints of Tibet, vows taken, these are not to a woman. or any other person.
wars began, more lives lost.
many more friends and acquaintances touched by cellular overpopulation.
and a scar.
a scar that marks me, separates me.
makes me wonder if anyone could love me
and not be scared of my death, or her own.
a scar that i hid behind prosthetics and strategically placed clothing
until i said fuck it.
i'm asymmetrical in the most tragically comical way.
but on my wall hangs framed, pictures my dear friend took of me.
a day before the cutting, before i became an amputee.
in the light, near the world's most famous bridge
i look so young, beautiful, defiant, terrified, peaceful.
a tank top, eggplant.
locks that would fall out from chemo.
black jeans
a studded belt
silver bracelet glittering
and two breasts, one soon to part.
Thursday, January 08, 2009
Requiem for W...Overture for O: Works of Conscience from 2000-2008
Requiem for W...Overture for O: Works of Conscience from 2000-2008
Hosted by Shanté Paradigm and featuring
Alexandra Beller, Tara Betts, Sabrina Chapadjiev, Drastic Measures,
Guta Hedewig, Remi Kanazi, Rachel Lane, Jesse Phillips-Fein,
Sapphire, Paul Singh, Spiritchild
& Gina Young
An alternative inauguration celebration, this evening honors how artists responded to the policies of the Bush Administration and encourages continued action for change. The pieces move beyond simply bashing President Bush and heralding President-elect Obama. Instead, they are intended to provide reflection on the past eight years, to foster discussion about how we survived and commemoration for those who didn’t, to create a space for critical thought about the role of artists in activism, and to distribute information about how to become involved in local organizations that are working on issues of social justice.
Friday & Saturday, January 23rd & 24th, 2009, 8 PM
BRICstudio 57 Rockwell Pl between Fulton & DeKalb, Brooklyn
Tickets: $15 Cash Only
Reservations: 718-228-7151 or jesse@jumpoffdance.org
More info at www.jumpoffdance.org
Endorsed by Brooklyn For Peace www.brooklynforpeace.org
Hosted by Shanté Paradigm and featuring
Alexandra Beller, Tara Betts, Sabrina Chapadjiev, Drastic Measures,
Guta Hedewig, Remi Kanazi, Rachel Lane, Jesse Phillips-Fein,
Sapphire, Paul Singh, Spiritchild
& Gina Young
An alternative inauguration celebration, this evening honors how artists responded to the policies of the Bush Administration and encourages continued action for change. The pieces move beyond simply bashing President Bush and heralding President-elect Obama. Instead, they are intended to provide reflection on the past eight years, to foster discussion about how we survived and commemoration for those who didn’t, to create a space for critical thought about the role of artists in activism, and to distribute information about how to become involved in local organizations that are working on issues of social justice.
Friday & Saturday, January 23rd & 24th, 2009, 8 PM
BRICstudio 57 Rockwell Pl between Fulton & DeKalb, Brooklyn
Tickets: $15 Cash Only
Reservations: 718-228-7151 or jesse@jumpoffdance.org
More info at www.jumpoffdance.org
Endorsed by Brooklyn For Peace www.brooklynforpeace.org
Wednesday, January 07, 2009
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